?

Log in

one more year.

« previous entry | next entry »
Dec. 15th, 2014 | 12:58 am

My seizures started in January of 2000. 14 years, 11 months ago. I noticed that this year, because 15 years is the point at which I basically regain my life span. About 2/3rds of adult onset diagnoses die between onset and now. In July, I suggested to Laurie Beth Brunner that I might throw a party at Arisia to mark this fact.q

Two weeks ago tomorrow, my body decided it was time to try and kill me another way (10% of people with my diagnosis are dead within an hour of it happening, 30% within the day, when it suddenly plummets to 3% if you make it through that).

It is what it is.

I am not actually too celebratory today. So many dreams got so close this year to be snatched rather violently away from me. So often, people joke, ”Here's to another year I didn't die during!". This year was supposed to mark that, as a huge, positive step.

Instead. Well. Here's to another year I didn't die during.

Link | Leave a comment | Share

Comments {8}

Trowa Barton

(no subject)

from: trowa_barton
date: Dec. 15th, 2014 06:32 am (UTC)
Link

We will celebrate.
Maybe not today. Maybe not during Arisia. But we will celebrate.

Reply | Thread

Margaret

(no subject)

from: mrw42
date: Dec. 15th, 2014 12:16 pm (UTC)
Link

May the upcoming year be better than the last!

Reply | Thread

She's Actual Size

(no subject)

from: weegoddess
date: Dec. 15th, 2014 12:51 pm (UTC)
Link

Here's to another year indeed. You've been using your energy for surviving and you haven't been beaten yet. It's not much, or maybe it's everything. You're having to deal with stuff most people never dream of. I suspect that you don't feel impressive, but you are.

Here's to a better year coming up.

Reply | Thread

The other side of Delirium

To another year.

from: taura_g
date: Dec. 15th, 2014 02:17 pm (UTC)
Link

I hope the coming year is much better than the last and proves that the dreams have just been delayed by a little while.

Reply | Thread

Tiger Lily the Ginger Cat

(no subject)

from: tigerbright
date: Dec. 15th, 2014 03:22 pm (UTC)
Link

It always bears repeating: I care about you and I'm really glad you're here.

Reply | Thread

Ayesha

(no subject)

from: browngirl
date: Dec. 16th, 2014 05:51 am (UTC)
Link

I second my roommate.

Reply | Parent | Thread

u_must_b_joking

Happy birthday!

from: u_must_b_joking
date: Dec. 16th, 2014 04:48 am (UTC)
Link

As a day to celebrate your most welcome and continued existence, it works rather well.

Reply | Thread

Lady Mondegreen

(no subject)

from: ladymondegreen
date: Dec. 16th, 2014 11:31 pm (UTC)
Link

Thank you for being such a positive part of my year. I hope your strength returns, that your illness abates and that remission comes on as soon is it damn well can.

*sending many good wishes*

Reply | Thread